Monday, November 17, 2008

To OT or not to OT

Ya gotta appreciate the beauty of a palindrome like "To OT" flanking the title of a blog post. Toot toot!

Yesterday, we had an early Thanksgiving with my husband's parents. One of the guests, whose son has a variety of "issues" (none of them autism related), commented that her pediatrician and his colleagues think OT is B.S. As in, occupational therapy is bullshit. And her further comment was that she agreed.

I sat there, eating the premature dinner of turkey and dressing (No nuts! No fruit! No SAUSAGE! This was real cornbread TEXAS dressing, thank God), and pondered it. I didn't get testy about it because in one sense, I agreed with her. When TH first entered into therapy, we tried a couple of things, including an OT who was named after a bird, and a psychotherapist. The OT almost gave all OTs a bad name because on our second visit to her (the first had lasted 45 minutes), as TH literally bounced off of the walls, she kept saying, "Oh, he's soooo much better! Wow! He's really doing sooooo much better!" The psychotherapist was a whole 'nother country, one we moved out of pretty quickly.

I couldn't tell if the OT Bird had just gotten TH confused with someone else, if she'd forgotten her meds that day, or if what she was doing was so flaky that one could experience it for 45 minutes, take a weeklong break, and then show up already doing soooooo much better. What made things even worse was that Mr. DMFP, not quite the knee-jerk skeptic I am, actually took her at her word. "He's so much better?" he asked, hopefully. "Yes!" she squeaked. I just rolled my eyes, and we did not take our son back to that OT Bird again.

And so, yes, I could see where a team of pediatricians might think that OT is bunk. Why they'd think that OT is worthless. I could see where this guest at the table felt the same way. Her son had experienced the negative, worthless side of occupational therapy, receiving treatment for the one thing he probably didn't require help with.

But I can also see where OT has changed my youngest son's life. He has real professionals, not twittery, gushing, flaky birds, professionals who work with him three hours a week. It's partly the professionalism of the OT and SLP team, partly the density of time, and partly our own greater experience on the home front, a therapeutic trifecta that has shifted Little Da from the path of shutdown-and-shutout to the only child we've ever had who knows how to give a hug. In our book, OT is not BS or bunk, at least not when used right, used judiciously.

Why the different impressions? Well, as anyone can guess, there are good OTs and bad OTs. The ones who know what they're doing, who know how to sift the good and sensible approaches from the nonsense (brushing anyone? I mean...I like it because it feels quite nice, but I'm not buying the "brushing = dopamine" and "joint compression = serotonin" and both Must Be Done or Else stuff...and onward).

Just as that is the case with OTs, so it goes with MDs. As it happens, the very MD who said this to the table guest happens to have been TH's first pediatrician. We liked him. He didn't give us any crap when we delayed vaccines. He took a laid-back attitude about most things. But...when I took TH in at his one-year and asked about his obsession with spinning, this pediatrician said, without batting an eyelid, "He's on target with language. He's fine." When I asked again at 18 months and at 2 years, now concerned about much more than spinning, again, the response was, "My opinion is, he's on target with language, he's fine." And the MD was wrong, at least in one sense. TH is fine, but he's also autistic, and those signs were there from very early on, for anyone to find, if they only knew how to see. Or where to look.

So, that particular MD--and the table guest--may be of the opinion that OT is a waste of time, that it's BS, that it's bunk. But, as the pediatrician in question so ably demonstrated in our case, sometimes, opinions can be wrong.

13 comments:

Maddy said...

Well my two cents would be something along the lines of......it's got something to do with chemistry. Take fifty fully qualified and experienced OT's and one autistic child. The interaction between the one child and 35 of the OT's will be o.k. Another ten to fifteen will get much better results. The last few will work magic with the child because there is some kind of special connection. Or at least that is the summation of my personal experience with my own boys.
Best wishes

Anonymous said...

I would have to say that OT is a must in some cases, but a definite no-need in others.

Sounds like your OT was a flake. OT is well recognised as an 'Aunty' profession, although few universities seem to be deliberately accepting balanced cohorts.

Paediatricians may not see a need for OT. Most of the stuff that paed OTs would cover are covered by play therapists, child nurses or sensory nurses. There's no real need to commission someone for something that you can foist onto someone you're already paying.

Personally, I yet to come across a critic of OT* who has effective knowledge of OT, direct experience (almost always nurses or parents) of OT, no major memory or reality perception issues, and no major hang-ups.

100% of the critics I've came across so far either have an outdated stereotypical view, are soured by a bad experience (often their fault), or simply don't have a clue.

*of the profession that is, not specific interventions or OT's.

Marla said...

I must say my eyes bulged out of my head reading that OT is BS. I don't agree at all. I do think anything can be BS if given by people who have no clue what they are doing or why they are doing it.

OT is not the end all be all either but it can be very helpful. I also don't think you need a degree to help a child with OT. I have done a lot of M's OT on my own and see a benefit. I went with her to OT, learned what had to be done and soon after we stopped going and I researched on my own. I really had no choice since back then our insurance would not cover it.

I really don't like that some doctors give such blanket statments and worse that parents then go out and say the exact same thing as if it is written in blood. Professionals don't know it all.

We have seent he benefit of OT and PT here. Big time. Much of what parents do with their kids if they are teaching them well, like how to button a shirt, use a pencil, hold a fork, etc....we are doing OT with our child.

It really blows my mind when someone said to me once, "Why does M need OT. It's not like she is going to have a job any time soon."

Oh my Lord!;)

isol8d said...

We just switched OT's. The local chapter of the Elks is providing our OT for us now.

I also just had to pick my insurance, and we were contemplating the numbers if we went back the hospital OT. My wife and I agreed that we could see no marked improvement, especially for the cost/time/aggravation of going back to that OT. Unfortunately, the hospital had a hard time keeping OT's, and as such, we'd get switched every couple of months, which did not work out well....

mamacate said...

This is an interesting issue. I was a real skeptic about OT, wanting to stick completely to evidence-based approaches with my son. Yet when we did finally get him to a sensory OT my view changed completely: "it's magic!" Brushing, however unscientific, changes my son's outlook in a matter of minutes. It might be the focused attention or the 1:1 interaction, but wow, it makes a huge difference.

I've recently had the misfortune of needing to investigate some dangerous "fringe" therapies that are used with kids with ASD. I've talked with a critic of these therapies, and she talks about the slippery slope opened up by the entry of "sensory" issues into the conversation, leading to coercive physical contact. My position is that empirically-unsupported therapies shouldn't be used, but where does that put my out-of-pocket investment in OT? There's a huge difference between potentially-dangerous, negative approaches and benign ones like sensory OT, but I don't want to cede the moral high ground. I suppose the answer is to do more research on sensory OT. I don't know why that hasn't happened.

Anonymous said...

OT isn't like many other professions. It's a profession that sets out to make itself as redundant as possible as part of its core philosophy. The more OT you have to have, and the less you do yourself, the less succesful the OT is.

Some professionals tend to overlook what OT actually does, even though they must have used the core principles to have succesfully become and stayed a professional. Some OT scholers point out that it is precisely the everyday nature of OT that fools some people into thinking we can do without OT.

Mamacate - Have you looked in Winnie Dunn's work? What about Golubock? I certainly don't think Sensory OT is unsupported by evidence (my learning disability placement certianly bought me into contact with numerous pieces of research) but then I also believe it could be potentially counterproductive (e.g. palm stimulation for people with hyperflexion).

Alyric said...

The brushing seems like OTs want to ruin their professionalism by literally brushing up woo. Pity about that because for fine motor co-ordination issues, who else do you get to work with your child on major necessities of life like hand writing? That worked very well btw.

Chris said...

Eye-opening post - more OTs should read it. Unfortunately those who would benefit the most are often least likely to question their own pseudo-scientific belief systems and practice patterns.

I blog about these issues frequently - or at least when I have the chance... feel free to visit my blog sometime.

Regards,
Chris

Trish @ Another Piece of the Puzzle said...

Hi - visiting here from My Autism Insights. I tend to not trust people who say one particular therapy is BS or, on the other side, is perfect for every child. I think each kiddo is going to respond differently to each intervention, plus the relationship between the individual therapist is such a big factor, as Maddy mentioned.

It would be hard for me to keep my mouth shut and be friendly when someone is making such pronouncements about any topic!

storkdok said...

We went through two OTs with no improvements over 2 years. The first one, well, was fired by 7 other families and myself for, well, just being incompetent, and frankly, a bitch. She actually started yelling in our IEP that my son didn't need any more OT time even though he was falling more behind, stood up and left the room, yelling the entire time. I was in shock. She never could establish a connection to motivate the kids. I actually think she didn't like kids, especially autistic kids. I heard later she used to say to other parents, "What is wrong with your kid, why doesn't he listen?"

The second OT was a nice man who played with A, but there were no improvements at all, and after 10 months, when I kept asking for another hour of OT a week, he said it wouldn't make a difference, I needed to accept that my son was autistic and would never learn much, I should just be happy he started to talk. Well, with such low expectations (along with the schools low expectations), and not understanding that I completely accepted my son and wanted him to reach his full potential, just like my other son, we switched schools.

That is where we found one of the best OTs ever. Jill was young, but thoroughly knowledgeable, and she could engage the kids, lots of reciprocity. The kids LOVED her! First thing she did was get a second hour a week and got an hour a week with the PT, to work on gross motor strength and coordination. We finally saw improvements! When he entered the school system, the school OT was/is wonderful, engaging and fun and knowledgeable. He has made tremendous progress, worked so hard, and enjoys drawing and coloring and painting now!

As for MD's, my own partner, our first pediatrician, delayed the autism diagnosis for months and months, with my dh and myself asking more than once a week what was going on with A, why wasn't he speaking? He was old school, didn't know what to look for. One of the other pediatricians in town still doesn't believe that any early intervention, including OT, helps at all. He tells everyone it is all a waste of time. And he is a "renowned" book publishing pediatrician, up to four books now, I think.

Yes, opinions can be wrong. There is a lot of incompetence out there.

Half rabbit said...

I talked to my GP about OT's but they seemed to think none of the ones any where near (except maybe 500km's away in Sydney) would be able to help in the type described above.

I will ask my paediatrician about them on my next appointment as strangely I have never asked before.

I find a compression shirt is *really* helping and am trying to get a weighted blanket and body sock.

Anonymous said...

First, I'll preface this comment by saying that I am an OT. So, I don't believe that my profession is BS. OT is a health related profession, grounded in neuroanatomy, physiology, and philosophy. It emphasizes a whole person view: mind, body, emotions, and environment. But, like any profession, there are those who are well trained and competent and there are those who are quacks or who just don't care. OT cannot be understood or categorized easily. We work with a broad spectrum of people: infants, children, adults, elderly adults. "Occupation" refers to all the tasks a person may do in their daily life. So, providing therapy for someone differs according to that individual person's needs. A baby's occupations may include suck/swallow/breathe synchrony, reaching/grasping for objects, eye gazing, etc. An elderly adult's occupations may include doing laundry, sorting silverware, playing a card game with friends, preparing a meal, etc. A good OT looks at each individual to figure out what is impacting their performance of their occupations. Then they work with the person at remediating, compensating, or changing the environment to help the person participate as independently as possible in their daily occupations. A good OT does not promise to have all the answers and does not work in isolation. Therapy is a team approach: the OT, the individual, teachers, parents, friends. I love the profession of OT because it is based in science but also requires constant creativity and problem-solving. OT's must constantly engage in continuing education as science makes gains in understanding the brain-body connection and develops technology to assist individuals with disabilities.
I'll step off my soap box now. But please know that there are passionate, educated, and wonderful OT's out there who love their profession and the difference it can make in people's lives.

Emily said...

Yes, and as I noted, we also believe that OT is important and firmly believe that it has significantly helped our youngest son. In fact, your words in the last sentence echo my own from the post, and as you can see, many others who have posted here feel the same way. This post isn't about OT being "BS"; it's far more about making the point that ANY profession will have its poor representatives (including pediatrics) and its professionals who do what they do well. The goal is always to be sure that you're receiving what the profession has to offer and not some sham version of it.

Emily