Tuesday, October 13, 2009

Back to our regularly scheduled worrying

Or, as we note in trends around here, OCD.

I have to look for psychiatrists for Dubya. His doctor told us to check out which ones our insurance covers, then give her the list. She'll select one who does more than act as a highly degreed drug dealer for children, i.e., one who spends time on behavioral therapies without (or with, as necessary) pharmaceutical intervention. He's a tricky case because his tics preclude many pharmaceuticals for ADHD, and the OCD just complicates things even more.

And apparently, we're not a moment too soon. The OCD behaviors have jacked up big time around here lately. Luckily, he came by it honestly--through his mother, i.e., Me. As an experienced obsessive myself (compulsions? only really really healthy ones these days), I can at least help him out with managing the intrusive thoughts that he's complaining about, having developed some good management techniques over the years. My obsessiveness doesn't interfere with my life; it just makes me a pretty good editor.

Intrusive thoughts like what, you may ask? Well, let me tell ya. Before I got into writing this post, I googled "pediatric OCD" and came up with a list of standard behavioral features. In fact, these are so prevalent among this population that if the behaviors differ from this list, it's likely something else, not OCD.

Common obsessions and compulsions in the pediatric population include

  • --Things having to be arranged in a certain way
  • --Contamination-related behaviors, like handwashing
  • --What they call "aggressive obsessions," which can include intrusive thoughts related to violence or catastrophic events
  • --Obsessions about harm to oneself or others
  • --Need to confess
There are a few others, but the ones I listed above are Dubya's set. He exhibited the handwashing behaviors starting a couple of years ago. He's so obsessed with it that if he touches his nose, he thinks he has to wash his hands. He's requested that we put the hand soap he likes in the upstairs bathroom, too, so he can wash when he's up there, as well. In other words, he's seven, and he's got a soap preference. We've informed his teacher and asked her to limit the number of times he can go handwash. With the limitations we set on it, he's not gotten to the scab stage again, although he did when he was about five. He's very concerned about contamination, and it's not helping much right now that everyone's talking talking talking about handwashing because of the flu. Nevermind the fact that it probably transmits most often by air.

He's notorious for his arrangements of things and for flying off the handle when they get disarranged. But it's the "aggressive obsessions" that are most prominent. These come through by way of his confessional impulse, so several times a day, he will "confess" something. Usually, it's related to some accident he was involved in as the causative agent, sometimes years earlier. He'll worry that rather than its having been an accident, he did it on purpose, which is classic OCD. He'll "confess" to replaying terrifying scenes in his head from movies that he hasn't even seen--he's just heard about it from friends. His complaint is that he just can't stop playing it over and over, freaking himself out. If he gets a consequence for the most minor infraction, he'll worry it for days, saying many days or even weeks later, "I'm still worried that I did that." And then, there's the typical family SIFO catastrophic thinking that abounds.

I'd say he probably spends most of his waking hours replaying these things in his head and worrying about them. And lately, in the last few weeks, he "confesses" several times a day. Sometimes, it's intended as a real confession, some very minor transgression of a year or two vintage that he's got to get off his chest. Repeatedly. Other times, it's a "confession" of the replaying videos of violence or aggression in his head. Never, I add, any violent behavior on his part. And then, other times it's some accidental harm he's caused a friend or family member that's eating away at him, even if it happened literally years ago.

I have watched that child from infancy develop into this anxious and obsessive little person. As an obsessive person myself, I've recognized some of the clear signs along the way and have done my own version of cognitive behavioral therapy to show him that his compulsions aren't required for life to go on. But given his youth--only just turned seven--and these escalating manifestations, those signs have become flashing alarms. Must. Head. Off. OCD.

Starting with this list of psychiatrists. Not my favorite MD population, so I confess that it likely will become just another thing that I obsess about.

5 comments:

r.b. said...

The best psychiatrist we ever had was adhd/aspergers himself. No blame your mama sh%t, no guilt. He understood it all.

Liz Ditz said...

I am of no help here, as I somehow learned to "change the channel" early.

But wait! -- Is that a useful metaphor for your boy? Give him an imaginary "channel changer"? -- so his internal video can be changed from AIEEE to a peaceful show about (was it acorns? Hours and hours of acorns?)

For me, anxiety manifests as physical sensations. If I can "reset" my bodily sensations through exercise, I can get a handle on the anxiety brain-lock.

Kristina said...

Have yet to have a good experience with a psychiatrist for Charlie.

Did better with neurologists and a neuropsychologist.

What you say about Dubya and the playing of scenes over and over in his head and confessing--I think this describes something about Charlie and why he'll seem to "erupt" "out of the blue----I really think it is because he is thinking about something and his thoughts collide. Or get stuck. Or things seem out of order.

(said by an OCD-er herself)

Norah said...

I used to have many compulsions and thoughts I couldn't stop (I do still have all of these things, but I'm older now, they're managed and they feel docile, like pets I tamed).

I remember being his age and cultivating my compulsions and rituals actively to deal with my fear disorder. It has always been (used to, anyway) the main 'bad guy' for me. A very early coping mechanism. They were actually very helpful even if they were tiresome and upsetting and got in the way too. The thoughts were not something I cultivated though, they just happened. Most often they were still images, or very short films, that just repeated over and over. They sometimes freaked me out because they were often about some physical harm, something very local and specific, like a wound on my arm, but mostly I had already long grown used to them.

Then after a while I got to the point where the compulsions didn't really help anything anymore (the fear thing actually peaked during late childhood through late teens), and so they were only tiresome and upsetting and got in the way (a lot more than before too, since I had many more by then).

When I was about 12, I used to lie in bed at night thinking: "Is this going to be my life forever, afraid to death every day, the whole day filled with useless repeated rituals, my day ruined if I can't complete one? Unable to go anywhere alone at all due to the fear, will my parents still have to stand outside the bathroom door when I go to the toilet when I'm 30? Will I be unable to even leave their house to live on my own?"
(Then later on it became clear that I have independent living issues that DO make it very hard if possible at all for me to live on my own the way most people do for some period of their lives, but not the fear thing :D. Noting that I also don't live with my parents anymore though)

And then I decided to force myself to get over the fear and drop the rituals. I didn't know then that I would never be able to get rid of the fear (which I suspect is some kind of chemical issue, in a layman's words), but I would learn to manage it and control and steer it, and not to need any rituals anymore either. I do like to keep everything in specific places, but that actually isn't related to the compulsions. I can tell now when a specific order of doing things in could escalate into another useless compulsive ritual (and stomp on it).
I have fewer compulsive thoughts and they are generally less disturbing too (usually neutral or just odd now), which is probably due to my fear thing being under control and my life being happier now.

That took me about 20 years all in all. It would have been infinitely better if I'd had some professional help, and much sooner than 12 too, but that's how things go. (I did go to see one psychiatrist when I was 15 or so, who told me my fears were completely natural, just a bit exaggerated from normal people, which didn't help me at all.)
So I hope you find someone skilled who can help your son quick(er) and effectively. I guess I mean to say I can somewhat relate to what he's going through (despite the differences there is a lot of overlap) and I would want to have been able to deal with it younger, and don't like to see (or hear of) anyone else struggle with it either.

Emily said...

One of the things I like about blogging is the information sharing that comes out of it. With our homeschooling dilemma, we got so much good insight and many good tips. With many autism-related issues, we've benefited from both autistic adults and from other parents. And here we are again, with these great suggestions and insights. Thanks to you all.

E