Wednesday, March 31, 2010

Smockity hath apologized--where do we go now?

The center of the recent storm over other people's perception of special needs children has apologized. I've seen different levels of reaction to the apology, ranging from full to modified acceptance. Everyone will have their own perception of apologies and their sincerity, in real life and in the virtual world. It's up to each person to determine how sincere they believe an apology is. I know that when I watch my children apologize, often what drives the apology is more the concern that they're in trouble than real concern about the injured party. But I also know that when I, as an adult, apologize, I mean it. I try to apologize without qualification, and I try to model it for my children. I say, "I'm sorry, I shouldn't have done that."

How do I view Smockity's apology? I'm glad she did it. As I have commented on some other blogs, my guess is that even pre-apology, Smockity was thinking about this episode, the furor it caused. Maybe she read some of the posts about it and understood some of the pain the parents who read her post felt. I felt that even in her defensiveness, she must be absorbing this information, and that next time something like this happened, she'd think not only twice but also more deeply about what she was seeing. That she would, in a phrase, be more aware.

Smockity describes herself as having been a teacher for several years. It's striking that in that time, she had not encountered or recognized an autistic student, but perhaps she was teaching in a specialized situation, such as a small private school, where such encounters would be more unlikely. I've run into this myself with our son, with experienced public school teachers, for example, who did not know that humming was a classic autism stim. My take-home message from situations like these is, We have much more work to do to make people aware of what autism is. While it's entirely Smockity's fault that she mocked a child, it's not her fault that she was unaware of the signs of autism.

Movies like the Temple Grandin biopic and books like the Paul Dirac biography are great starts to educating people about the spectrum and potential of autism, but I think that they tend to attract the choir. Don't get me started on the notorious and notoriously misleading Autism Speaks video or the narcissistic rantings and child vilification that goes on over at Age of Autism.

This is the month for Autism Awareness. Of what should people be made aware? I once thought that the priority was the needs of autistic people, young and old. I still think that's a priority. But given the Smockity debacle--her lack of awareness and that of many of her commenters--I think we also need to set a more educational priority. People need to know what autism really is, as autistic people live it. Mom-NOS did it at the grassroots with her classroom presentation about autism and her son. We did it, to good immediate effect if not long-lasting outcomes. How do we make that happen on a broader scale, now that we've taken a small baby step with Smockity? Do we continue on as we have, one baby step at a time, occasionally like the Red Queen in Alice, fighting a negative tide so strong that sometimes, it feels like we're running in place?

18 comments:

KWombles said...

You raise such important points. I'm not sure how we do it all, but I know it starts with the connections we make with each other, the positive support we provide, the real world reaching out we do in our local communities and a commitment to continue to fight this battle each and everyday for our children, for ourselves, and for all those who face rejection and isolation because of their differences and disabilities. We, in short, engage in kickass kumbaya, never losing sight of the long term goals of acceptance, appreciation, and accommodation.

Well, shoot, that was stirring enough that I'm putting it on my blog, too. :-)

Emily said...

Kim, definitely worthy of its own post.

KWombles said...

:) It's up now. I quoted your passage regarding how we make it happen in the larger, more permanent context. Thank you for the inspiration.

storkdok said...

Well said, Emily! We have lots to think about.

I take my boys out into the community all the time. My oldest participates in many things like martial arts, swimming, Mad Science, trains, aquariums, museums, ice skating lessons and the ice show, etc. and he is kind of our little ambassador. He is so open to meeting new people and learning new things, and he is so sweet, it gives us the opportunity to educate people in our community. Most people are very tolerant and receptive and have accepted him with open arms, making accomodations for him as soon as they understand his needs.

Deb(bie Debbie Doo) said...

just put the book on hold and the Claire Danes movies on save in my netflix Q -thanks so much for sharing ;)

Ana Through The Looking Glass said...

What a fantastic post!

I missed the Smockity thing as I am new to blogging about my daughter's ASD, also being the the UK I suppose didn't help.

I cannot comment what it is like for people in the USA because I have no experience of it. But here in the UK there is a large misunderstanding of what exactly autism is and the signs associated with it, even in the medical profession.

I fought for 7 years to get a diagnosis for Ana, this was mainly due to the fact that she was not non communitive or 'in a world of her own' as was expected.

Even now it is incredably frustrating as sometimes people's only expereince of ASD come from movies and very much outdated views.

I always feel that I can never put what I mean into words as effectively as you all do and I sound silly :(

christophersmom said...

My son's teacher has 30+ years in the public school system (between K and 1st grades) and never had a student with a full autism diagnosis (like my son) in her class. Either due to chance or because kids like mine usually go to Special Ed classrooms. She's having a hard time understanding my son's behavior and I'm having a hard time dealing with her. So glad the year is almost over. She also turned down my suggestion of a Circle of Friends-type presentation.

farmwifetwo said...

On Monday at the school meeting I was told I should put him back on Risperdal b/c he was flapping, vocal noising more. I ignored it, did what I had to do and left, my FSW though picked up my peeved mood and we talked about it. I did mention that he nor I was sleeping but it didn't seem to register with them nor did they seem to care.

I got home, thought about it and Tues morning send the Google version to the Teacher and VP along with a short note. I didn't post any blog links.. I tend to keep RL, and online VERY separate. Hence, no facebook etc.

No reply, I didn't expect one. But I hope they got the point.

Appologies for me are take or leave. I have been screwed over sufficiently these last 10yrs that I find actions are much more important than words could ever be.

Kassiane said...

Oh gosh. I think I'm glad I missed it. Based on the apology I'd have Words. I may still have Words.

I have some things to say on being autistic in public (speaking of Words). Time to dust off the rusty old blog.

Louise said...

I'm one of these people who thinks there's almost too much autism awareness right now. I know too many parents who think they can spot a "problem" child who they think needs to be removed from their child's classroom (so as not to "disrupt" the learning of their precious "normal" child). So to me the most important message is this: There's no such thing as normal. Just because my kid is "different" does not mean your child is better, or that your child is going to do better things in life, or that your child is a more valuable learner in school. Smockity represents what a lot of parents think but don't say--your "messed up" child is worthless and my "normal" child is Really Going Places. I'm so over it.

Daisy said...

Awareness being the lowest form of knowledge, I'm so disappointed that we're still making people "aware" of autism. It's time for people to come out of their sheltered corners and get to know autism, its quirks, its strengths, its variety. Smockity's disastrous post helped us educate her; but what about the rest of the public?

Ali said...

I think most everyone has gotten the message that autism is out there--what matters is that they understand the huge variety that the spectrum covers. There seems to be a cursory grasp of autism--very stereotyped and limited--in the public eye.

Even most of the doctors at the public children's inpatient psych hospital where I work aren't very familiar with autism. I've seen girls be rediagnosed with all sorts of things post-admission when they were clearly on the spectrum, because they were girls. Verbal children get new, inappropriate diagnoses. The only kids that seem to come in with an autism diagnosis and be believed are nonverbal or barely verbal little boys.

It's not that these doctors are unaware of autism, per se, but that they are unaware of the huge spectrum covered by that word. Most people are like that.

The only effective measure I've found to combat it is to be in public, and unapologetic for who I am--stims and all. Well, and I'm considering a t-shirt ("Autism: it's more than what you think.").

sandy said...

I think that we still have a long way to go regarding awareness.

If you read the comments on Smickity's facebook page under her apology link you will see that many of her "fans" don't think the apology was necessary and that we parents that felt offended over-reacted. (Sigh), I wonder if the message has sunk to her broader audience?? Sadly, I don't think so.

Tara said...

@sandi,

actually, one of the last Facebook comments goes so far that it associates offended parties with - wait for it - Satan.

Quote:

There will always be people that look for things to complain about, they enjoy upsetting people because they are unhappy people themselves and they don't follow the word of God, if they did- they wouldn't have been ugly to you....you have to ignore them, if you don't ignore them & let them upset you...then they- (Satan) wins.

If I was half gob-smacked with Smockity's original post, I am certainly fully gob-smacked now...

Emily said...

You know, when people start dragging Satan into it, I reach the point where I don't give a shit what they think.

Martian Momma said...

Hmmmm, I think Satan's influence is usually slightly more subtle than that - someone needs to read The Screwtape Letters by CS Lewis:

"What is the use of whining to me about your difficulties? If you are proceeding on the Enemy’s [ie, God's] idea of 'justice' and suggesting that your opportunities and intentions should be taken into account, then... you will soon find that the justice of Hell is purely realistic, and concerned only with results." (Chapter 30).

sandy said...

Emily I agree it's ridiculous.

I am ready to give up on smockity and her fans. she deleted a post on her facebook page under the apology link that was very educational in light of autism awareness day. The post was by someone named Jermey and he asked that people not frame the debate in terms of "judgmental christian" vs "satan". It was really a measured and wonderful and insightful post about how autism is often referred to as the "invisible disorder". He said the mockery was bad but the comments about fans ROFLMAO were hurtful too. I checked the facebook site this morning to see if there was further discussion only to discover that the wonderful post has disappeared :-(
(however the post from her fan calling complaining parents "satan" remains).

i suspect the smockity apology may have been half hearted and driven to prevent her blog from being tarnished (keep sponsors etc). now i am certain that this is the case.

Kassiane said...

SATAN? Seriously?

Now this is where I had an issue with her post in the first place.

(stop reading now if you're going to be offended by me saying what I really read out of it)

Oh poor persecuted christian me! I didn't hurt autistic people or the people who love them! In being misunderstood and corrected I hurt JESUS! It's all gotta be about jesus even when it's my screwup, we can't yell at the good christian lady!

Yeah. No. The self righteous non apology was less than endearing. Who Would Jesus Insult?