We'd formulated plans before, only to have to jettison them thanks to those nifty little curveballs life has a penchant for throwing. Big plans and little ones have gone astray, forcing a regrouping of minds, bodies, and possessions as we embarked on the next branching in the path. But this time? This time, we thought we had found It. We were in, for the long haul.
What did we expect, I wonder? We've discussed it quite a bit lately as play date invitations don't come in, as our sons wonder out loud why people don't invite them to their homes, as we realize that the dynamic among parents likely has as much to do with socialization and socializing as the dynamic among the children. As we realize that we were really pretty much total idiots to think that we could reinvent life, reinvent genetics, reinvent destiny and make our sons' lives something we never had thanks to genetics and destiny.
Four years ago marked our entry into this school district. The plan was that TH would enter with the kindergarten cohort, that they'd get to know him, if not accept at least tolerate him, that he'd be so familiar to them at school and in the neighborhood that this very familiarity would breed a sort of comfortable ignoring, at least, of his oddities.
Built into this plan was the purchase of a home we could barely afford in one of the most expensive--and among the highest-ranked--school districts in the state. Built into this plan was the move into a suburb, one I'd literally sworn several years earlier I'd never live in. Built into this plan was volunteering at school, forcing myself to interact with people, joining a goddamned country club, putting our sons in Boy Scouts, soccer, after school activities. Holding birthday parties. Inviting people over for play dates. In other words, the plan was to be many of the things we are not and never have been. All this compromise, all this submersion of who we really are beneath this built-up foundation on behalf of our children.
That foundation was weak. Shockingly, it turns out that we are not people who are good at pretense. We are not social butterflies, we don't care about neighborhood or school politics very much, soccer and football are not our thing, and I just can't get that wound up over whether or not the teacher's gift should be monogrammed. Everyone looks the same here, and my mind and my eyes and my ears crave difference and new insights and some seriously interesting people watching. Playground visits in our neighborhood seem more like a junior-high dance, with the mothers all guardedly eyeing one another, scoping out whether or not the other mother has on the right...oh, everything. The tennis skort, the sports shoes, the pony tail bouncing around over the sunshade hat.
We can't pretend. I started realizing this about three years in, exhausted from efforts to conform and somehow shoehorn my parallelogram-shaped children into the smooth round holes that everyone else's children seemed to fit into effortlessly. As the Viking pointed out, what were we thinking, that we--the two of us, insular, hermity, nose-in-a-book, trail-loving, non-football-watching, quiet-loving gen-X geeks--could possibly have children who'd be any different? That's like expecting a pair of cacti to produce a towering oak. Where we are, among the sturdy, fit oaks, we are just that: cacti. And you know what? Cacti just don't socialize very well.
So, we canceled the country club membership a year ago. Ditched soccer, tried one day of flag football only to walk--run--away and never look back. No Boy Scouts, which ended up being a free-for-all among the smoothly fit little round oak progeny in our neighborhood, one into which our little cacti did not do well. Haven't been to church in weeks, have only one child now left in the public school in the district, and we drive across town to the playgrounds at the burgeoning mixed-use development on the east side so that our children can play and we can bask in the people watching, not worried that we--and our children--are in some way not fitting up to wealthy suburban standards. I'd love to be above all that, and in some ways I am, but years of knowing that judgment is there in this fishbowl of a suburban life has made me edgy and paranoid about it.
For the last few days, as one child or another has cried about not having a playdate or told us mournfully of their "best" friends from school meeting at one another's houses for playing, as we realize that this district of perfection and football and clean suburban living is not It, we've done a lot of talking. A couple of times now, we've moved somewhere, thought, "This is it." And it's turned out not to be. We bought this house, invested in this life, compromised ourselves trying to make This one be It. And it was, yet again, a mistake. We think we have a plan--selling here, buying in a place we've always longed to live, one that feeds into everything about us that isn't a compromise. But will it happen again? Will what we think of, again, as It turn out not to be?
I've thought about it a lot, thought about all of these Its we believed in so strongly until we'd lived in them long enough. There were some great positives from each of these experiences, yea verily, even a tiny little batch of good friends, and of course, this dawning realization that it's sheer folly to try to compromise who you really are for the sake of your children. And what I've realized is that maybe it doesn't matter if what comes next is "It" or not. Because whatever we're doing right now, here, growing and learning and living through pain and happiness, as long as we're working toward making us and our children the best selves we can be--well, that moment, that now? That Now is IT.
11 comments:
I have a feeling that a lot of us parents of autistic kids relate intimately with this, Emily. I certainly was and still am the odd duck out in many places. I found a niche, one where I can be true to myself and who I am, and I'm working hard to figure out the best way to equip my kids to find their niches, wherever those might be.
Bright boy attended the day center for the disabled for several years before he made a close friend at the age of 17, and it took his friend having similar issues and interests. Lil has been fortunate and found a good friend this past year, but again, it's a friend who like her has issues. We're still waiting on Rosie to find a friend, but she's not missing the absence as she has her brother and sister.
The best tools for happy lives that we can give our kids is how to be comfortable in their own skins and we do that by embracing our own.
The internet and blogging let me finally find like-minded individuals with similar interests who have become, next to my husband and parents, my best friends, people I confide in and trust and know get me and accept me. It took 40 years to find that, but having found it, I'd like to think I'm better armed to help my kids find their community, their niche, sooner.
I tried to join the parent group when one was 2 and just dx'd with autism and an little boy was an infant and discovered, there are worst cliques to upper class neighborhoods... it's 500 people villages. Which is why we'll NEVER have a facebook page.
8yrs later I no longer care. We do our own thing. In some ways we're more villagers than ever, otherways we advoid them like the plague.
As I told mentioned to another resident in our Munic a few weeks ago... I don't give a sh.......t anymore. We have our stuff, we do our thing, people can assume what they want...
But yanno... it's nearly 60F outside, hot for November... it'll change in a couple of days. It's a PA day, little boy has been playing outside for the last 3yrs... finally talked him into coming in to use the bathroom... Home grown striploins are going on the bbq tonight...
Life's good.
Emily, I very much relate to what you're saying. Many of us, whether we're autistic ourselves, have autistic kids, or both, respond to any curveball that life throws us with "Get to Work." We come up with many well-laid plans, that all make perfect sense in our perfectly rational minds in a perfectly rational world, and then...reality hits.
I've come to the conclusion that I need to be where I'm happiest--not because I think that it's going to solve all of my problems, but because it's the place that best suits my unique set of traits and works with me as I get more comfortable in my own skin. I grew up in the suburbs and wouldn't last an hour living in one, but I like the rurals because people give each other a lot of room. Sometimes, it's a little too much room, but these days, I'd prefer too much to too little.
I'm taking a guess that you may be considering CO as I recall you've talked about it before. Colorado is currently trying a program called the Colorado Model Autism and Significant Support Needs (comasp) in certain regions. If you'd like more info, I'm happy to talk with you about what I know, as our school has been designated as one of those sites.
You can also go to http://www.cde.state.co.us/cdesped/SD-Autism.asp and at the bottom of the page is a little blurb about the program with some contact info. If you're flexible about where you're going, it's something to consider.
You and Kristen today...Man, you guys are KILLING ME.
That was beautifully written. Beautifully.
I can relate to some of this too. We moved to this house just before Charlotte turned 3 and we didn't know anything about special needs preschool or IEPs and we weren't really suspecting autism at that point. Our street is quiet, not a lot of kids, and so not lots of opportunity for neighborhood friends.
Last year we went through this period of thinking we should move to a younger neighborhood with a community pool and playground where the kids would congregate and then it would create all these natural social opportunities.
As we kept talking about it, we realized we'd hate that kind of neighborhood. We don't want to be friends with lots of people in our neighborhood, and we don't want to deal with the possibility of people not liking us or our kids.
I too often think that the next thing will be It, but really it never is for us either. It is Right Now.
You are spot on here, Emily.
I randomly came across your blog. This was beautifully written. So honest.
I hope that you can find a niche for your child and yourself where he will feel comfort (and you).
karahoag.blogspot.com
I wonder just how many of us live the same reality. These school districts are so important in getting our children the help they need, but the people who live in these districts leave so much to be desired. While I did go the PTA route, more because I wanted to help out at the school rather than fit into the social scene, I happened upon the parental politics of our little village. It became very apparent early on that there are just some people who never outgrow middle school. So I decided to be there for my children, help out at the school when needed and remind myself that these lock-step Type A parents are not the real world just indicative of so many with warped sense of values.
This really hit a nerve. I think some of us are better-equipped than others to consciously enter a community that we know in our hearts does not fully accept us. Some people do it because it's the only way to get access to certain things for their kids — a higher-quality education, or a safer neighborhood. Some people are motivated by an abstract desire for justice — if they don't want me at their party, then goddammit I'm gonna come anyway and bring 30 friends. I salute the people who can pull this off. They're blazing trails for people like me, who don't have the courage or the social skills to do it ourselves.
I also really identify with the struggle to figure out when to cut your losses and move on. There's always the fear that I'm just running away from my problems, and that wherever you go, there you are, and all that zen stuff. But it sounds like you've done your homework and have realistic expectations. It might take a couple of tries to find the right fit, but it's worth it.
I know that I have to save my extremely limited resources in the paste-on-a-smile department for the times I truly need them: when I have to deal with a mortgage broker or an insurance company administrator or some other former high school cheerleader who is now a 40-year-old wearing a blazer and pantyhose by choice. Doing it once in a while is tough, but it makes me feel like a superhero when I succeed. Doing it every day eats away at your soul.
I recommend model airplanes, of the Free Flight variety. Yeah, I realize nobody does that anymore, but it' still the finest kind. Zilker park is a perfect place to toss a chuch glider or release a rubber model.
You can do it all by yourself (well, you and your stopwatch).g You get to make things with your hands, use your head to make them fly well while teaching yourself math and aerodynamics , and you get your exhilarating chases in the open air, as well as the spiritual exhilaration of seeing something you've tossed from your hand just go up and up in a thermal until it disappears out of sight overhead.
P.s. I totally concur on the C. Club. This benighted county I have to exist in has somewhere around 200 golf curses in it, and would you believe that there is not even one anti-personnel mine planted on any of them? That's just wrong.
I just found your blog and wanted to let you know that I really enjoyed this post. Our little boy was diagnosed with autism last summer, and I can relate to the constant pressure to find better schools and better services for our children. We live in a very rural area, so of course there is some pressure to move, even though we absolutely love it here. It can be hard to find a balance.
http://www.theaword1.blogspot.com/
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