The Fourth Circuit Court of Appeals has ordered Super Duper to pay $1 million of its profits and $2.6 million in attorney's fees to Mattel (a $5.4 billion a year company), take SAY and AND SAY out of seven product titles, and destroy $500,000 of special needs products because they have the words SAY and AND SAY on them.
Tuesday, August 31, 2010
Say what, Mattel? Say...Bullshit
Thursday, August 26, 2010
How do you start school?
Tuesday, August 24, 2010
Are there really physical features of autism?
- Brachycephaly (flat, wide head; TH had this from back sleeping, but his fontanelles didn't close until very late, rather than too early)
- Mouth asymmetry
- Ear lobe crease
- Asymmetry of the eyes
- A large mouth
- Limited facial expression (only in new social situations)
- An abnormal whorl (TH has a piebald hair color distribution; he has a neurotypical cousin with double whorls)
- A prominent lower jaw
- Sandal gap toes
- An abnormal frontal hair whorl
- Attached earlobes
- A high, narrow palate
- Hypermobile joints
Monday, August 23, 2010
In defense of reproductive choice: homebirth
MDs can tell the horror stories and have seen babies die in terrible and avoidable ways, and as someone who engages daily with medical and health information, I know these stories, too. The doctors have seen the worst, and their minds can instantly pathologize any situation. They've got legitimate fears about women giving birth away from the emergency interventions a hospital can offer. For the record, I had those fears, too, but in my cost-benefit analysis, my home was the better choice of places for the one fully healthy pregnancy I experienced to reach its end. As a woman, a person, an adult, the pregnant woman, the mother, it was and remains my right to weigh the balance of these issues and make that choice.
Friday, August 13, 2010
Brain Balance Centers: a critique
A properly functioning brain communicates between both hemispheres as well as within each hemisphere at lightning speed. Think of these communications like runners in a relay race: They connect, pass on information, and release, repeating this process millions of times a minute. In a poorly functioning brain, these runners are often out of sync, missing each other or passing on only partial information. This miscommunication is called Functional Disconnection and is at the root of all types of neurobehavioral and learning problems.
The Brain is Changeable
It was once thought that the brain was static, unable to grow or change. But extensive research and in depth study of epigenetics has shown that it’s remarkably adaptable, able to create new neural pathways in response to stimulus in the environment, a branch of science called neuroplasticity. Additionally, it is now understood the difficulties associated with a wide range of learning disorders and neurobehavioral disorders result primarily from environmental influences that affect genetic expression and are therefore often correctable. Because the brain can change, and because difficulties can be corrected, children suffering from Functional Disconnection can be greatly helped.
- Michael Merzenich, Ph.D.
Professor of Neuroscience, U.C.S.F.
As stated, clinical research indicates that these Neurobehavioral/ Developmental Disorders are related or have in common an underlying functional imbalance or under-connectivity of electrical (brain) activity within and between the right and left sides of the brain. As a result, the brain literally becomes desynchronized or “out of rhythm‟. So, just as an orchestra may be filled with gifted musicians, the music played will sound horrible if the musicians play out of rhythm. It is the same with the brain; it too must function in rhythm or synchronicity.
Leisman, G & Melillo, R. (2004). Neurobehavioral Disorders of Childhood; An Evolutionary Perspective, 1st Ed., Springer Science + Media,inc., New York.
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The second is just confusing. Clearly, they copied and pasted something from the FDA but didn't do it quite right. But it does bulk things out, doesn't it:
Terry Davis, FDA (just use web citation format as seen below)
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The third is...the DSM IV-TR. Which, I assume, contains information directly counter to what they're asserting on their "Science" page, as it does in fact divide these disorders into discrete categories.
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The fourth resides in the dead-link cemetery:
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The fifth is simply hysterical, in addition to being 14 years old. Click on it. WTF?
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The sixth is also six-feet under in the dead-link cemetery. But given the title...I'm guessing it probably just discusses Rett Syndrome, which they do not even mention in their laundry list of things they're gonna correct. Of course, that's....clearly genetic, so it doesn't fit with their effort at a rationale, either...
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National Dissemination Center for Children with Disabilities, “NICHCY Connections…to Childhood Disintegrative Disorder”, April 2004. http://nichcy.org/resources/disintegrative.asp
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In other words, of the seven "citations" they provide, only one has anything to do with what they're describing in The Truth, and it's a book written by the guy who developed the program.
My guess is, there's a certain expectation that the list alone is sufficiently convincing without parents having to do all that pesky footwork to check these references out.
Finally, in a tour-de-force of marketing, they promise to be "brain based, not drug based." This is a brilliant appeal to parents who are extremely uncomfortable turning to drug therapies--therapies that have proved to be enormously effective in many cases--for their children. It's gonna bring them in in droves. Them, and their presumably pretty deep pockets (read on).
So, what do we have here? Let's refer to our pseudoscience checklist, shall we?
1. Is there a clear monetary reward? A quick overview of the ZIP codes in which BraBaCens are established and the offer of the good doctor's books on the site and the fact that the program, according to one report, costs at least $5000, gives this one a big ol' checkmark. It's a franchise, for God's sake. Some parents report having spent even more ...and some parents are not happy with their outcomes. I recommend reading all of the comments at this link.
2. Are there requirements for paying more as you go along? There are many mentions of tweaking and evaluating and ongoing this and that. And then there's that $5000 and growing (see #1, above). To quote one parent: "
There were promises by the director of music cds, books, software programs for post session. In the end, our family is out $5K. When the program completed, we were told, 'we'd love to continue to work with your child-but we will need another $3K to continue.'"
3. Is there a central personality rather than a core science supporting the therapy? Yes. The author of the book that serves as the sole existing cited support for their ideas. They also refer to their program as "proprietary." If you had something that really, truly ameliorated the "negative" behaviors of any one of these disorders, how would you choose to disseminate it?
4. Is there use of sciency-sounding but often nonsensical terms? "Functional disconnection," anyone? I can just hear parents in my neighborhood throwing that one around, nodding sagely. And that blather about how the brain is involved in brain differences...gee golly whiz.
5. Is there a promise to cure a number of unrelated disorders? Yes. While I can buy that there is some overlap among these disorders/differences (that'd be because there is science underlying that), the ideas posited here are shallow and unsupported, and the fact remains that even with overlaps and commonalities, these disorders that they're promising to cure wholesale on the basis of an asserted common mechanism are still distinct. Tourette's is not autism. ADHD is not dyslexia.
6. I'm adding in another one here: Do they rely on testimonial instead of science? Why, yes. Example:
We urge those of you who still have questions to visit our new blog for the Georgia Brain Balance Centers at BrainBalanceGABlog.com and take the time to read the information and decide for yourselves. There are some very powerful parent testimonials...
But no mention of powerful science or data or outcomes.
Conclusion of critique: I'd keep away from these folks and their expensive, proprietary promises.