In its 4.5-year existence, this blog has featured 658 posts. A couple of dozen still sit there, as drafts, ideas started but not completed, probably some rants begun and then fizzled away. A grand total of 280 of those posts have been about parenting, but 310...almost half...have been about autism. Ever since our oldest boy received his diagnosis at age 3, a diagnosis I had long anticipated, our parenting has, indeed, been knowingly about autism. Before that, it was also about autism, but we didn't know it yet.
The bytes and bits here have chronicled our lives--the ups and downs, the roller coasters--the fears and worries, decisions and realizations big and small. Through it all, we've had help. Support from insightful and caring autistics who have stepped in every time I've asked to let my son know that it gets better. Support from parents with whom I may not always have agreed but whose thoughtful insights have sometimes been revelations.
Writing here has involved catharsis, enlightenment, missteps, and moments of epiphany. It has been one of my deepest pleasures and greatest needs. But my son is now 10 and a half. I've noted recently that I cannot in good conscience continue to write about him while maintaining my sense of what I owe him as an individual and to respect his personhood. My other sons are also getting older, and I am becoming acutely aware of the need to maintain their privacy, as well. I will continue to blog, but not specifically about them or about our lives, and not here. While our lives less ordinary continue, this blog has run its course.
One thing I've always noticed about blogging is that it's not my posts about our personal lives, about our upheavals, that attract people and pile up the comments. It's always the controversies, the things that anger people, the posts that cross some line that divides...those are the ones that get people to read. Frankly, while I write posts like that compulsively when I come across something that raises my ire, I've always found it off-putting that people generally don't seem to care nearly as much about, you know, life and all that as they do about fighting with each other. It's not news to me, but it has left me somewhat cynical.
In my penultimate post, I sketched out the core of what I've learned so far in my years in the autism community, most particularly what autistic people have taught me about listening, about individuality, about voices. All change takes time. As we continue to work for that change, fight for that change--and yes, it takes conflict to make it happen--we probably will all, whether we're writing about it or not, continue our fascination with autism as we remain, turning and turning, in its ever-widening gyre.

18 comments:
Dearest Emily,
I have been spending time re-reading blogs that have gone silent, mostly by autism parents. The wisdom therein in deep and rich.
I will miss news updates on the boys' growth and how their delightful personalities are blooming.
I would strongly encourage you to do two things: preserve an electronic copy of your blog, and print out copies for your boys to read when they are older.
Really sorry to hear this right now. A little cousin of mine is in the process of probably receiving an ASD diagnosis, and I've been coming up with a compilation of my favorite resources and collected wisdom to give to his parents. I hope you'll let your archives stay up, so that people can continue to benefit from your insight.
Liz, thanks for the suggestion. I've done that now.
@chavisory I am leaving it up. I was just about to email you bc TH was reading your comments on that post about autism and adolescence again, and he was just so touched. I wanted to thank you again for that and everything else.
Although I've only been reading your blog for a few months, I so appreciate what I have learned from you in that time.
I wish you and your family all the best.
I'm sorry, because the personal stuff, the day to day handling of everything in your lives with your love for your children first and foremost was inspiring to me and helpful in ways you can't even imagine in appreciating the few children with Autism I've had in my programs.
Thank you for writing.
Well, hell. But understood.
I'll sure miss your updates on your boys and the Viking. Loved hearing your stories and perspectives. Thank you for sharing while you could.
I am sorry too, your updates and calm rationality have been a joy to read. My son is older than TH, yet so many things resonate - and I could only wish that he had some of the insight that TH has. Best wishes to all of you.
Emily,
It sounds like you're planning to continue blogging and just avoid "private" issues, which is fine. Correct me if I'm wrong.
Your voice has always been an important one in the Autism community and although you raise many issues which are painful or topical, they have always needed to be discussed.
It's sad that the discussions haven't always been civil but I guess that just means that your posts touch an emotional core in a lot of people.
You should be proud of what you have written and I hope that at least you maintain your presence in some form because your voice really does NEED to be heard.
I have blogs that are not "personal" blogs and will continue blogging at those. I will not resume parenting blogging. I may eventually begin another personal blog, but it will be very different in content from this one.
That's really good to read about TH. I'm tearing up a little bit, actually. I just hope that he can carry some measure of peace and assurance into adolescence that I didn't have at the time.
I'm so glad that you'll continue to blog elsewhere, as I would miss your voice. I well understand your needing to make your kids' lives more private at this point, and it sounds like your making just the right decision for yourself and your family.
Farewell, Emily. I've enjoyed your blog for the thoughts provoked.
Your posts have been helpful for me to read. Thank you for your past sharing about your journey.
Emily, I've always loved your posts about your family, and I'll miss them, but I'm sure your sons will appreciate your respect for their privacy. I look forward to reading your posts elsewhere in the future.
I'll miss you. Last week my boy asked "Why is everything so difficult?", and I remembered your blog about your conversation with TH from a couple of years ago.
Thanks for everything.
NOooooooooo. I completely understand.. and if you decide you just can't help yourself and need to write a bit more... that's okay too. xoxo
Thank you, Emily, for your thoughtful writing and please thank TH for us parents who have learned so much through you and his experiences with him. I completely credit you for my taking the steps to homeschool my nine-year old daughter (with the same curriculum as you chose for TH) and think often to myself "What would Emily do?" :) You are an inspiring teacher, parent, and scientist. Best wishes to you, TH, and your family. I'll be following you on your other blogs...
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